Developing Quality Metrics from Patient-Reported Outcomes for Medical Rehabilitation (PCORI)
Why is this study needed?
The study is part of a portfolio of patient-centered research that addresses PCORI’s national research priorities and will provide patients with information that will help them, make better informed decisions about their care. Patient-reported outcomes measures (PROMs) provide a valuable information source yet inpatient rehabilitation facilities rely primarily on clinician-rated outcomes.
How will this study help patients and rehabilitation stakeholders?
Currently, there is a widespread recognition of the need for quality measures, particularly those that focus on PRO issues. Evaluating the feasibility and demonstrating the validity of PROMs for use within quality measures would be cost effective and allow collection of items that define quality measures. With adequate case-mix adjustment, outcomes data can be interpreted in clinically meaningful ways, compared across time and programs, used to identify which treatments are associated with better outcomes for which patients, and used to assess program effectiveness.
What are the project objectives?
- Objective 1: Identify Issues that are important to the quality of care for rehabilitation patients that are amenable to the collection of patient-reported outcomes
- Objective 2: Evaluate the feasibility of collecting PROs
- Objective 3: Specify items required for quality measure development and design data collection modules that can be used in quality improvement efforts and to demonstrate accountability of health care delivery.
How will the project objectives be achieved?
- This project will identify issues that are important to the quality of care for rehabilitation patients by conducting focus groups with clinicians, caregivers and patients with stroke, spinal cord injury, traumatic brain injury, Parkinson’s disease, multiple sclerosis, and other neurological conditions at the Rehabilitation Institute of Chicago and Alexian Rehabilitation Hospital.
- We will consult with an advisory committee of stakeholders, consisting of representatives from consumer advocacy organizations, consumers, professional organizations, as well as healthcare providers, educators, and policy makers, for additional guidance on valued outcomes of medical rehabilitation and patient-reported outcomes that reflect these concepts of quality care.
- We will administer advisory committee-selected PROMs to 300 rehabilitation patients at the Rehabilitation Institute of Chicago and Alexian Rehabilitation Hospital and evaluate the feasibility of PROM administration, considering patient and organizational issues.
What agency funded the project?
Patient-Centered Outcomes Research Institute (PCORI)
Easygrants ID: 4201
What is the duration of the project?
September 1, 2013-August 31, 2016
Primary Project Staff
Allen Heinemann, Ph.D., Program Director, Rehabilitation Institute of Chicago
Anne Deutsch, Ph.D., Rehabilitation Institute of Chicago
David Cella, Ph.D., Northwestern University
Karon Cook, Ph.D., Northwestern University
Linda Foster, Alexian Rehabilitation Hospital
RIC Project Coordinator:
Related Project Research Web Sites
Patient-Centered Outcomes Research Institute
PCORI Funding Award Announcement
Patient-Centered Outcomes Research
Affordable Care Act
National Quality Strategy (NQS)
National Quality Forum
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