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TBI-QOL - Measuring Quality of Life for Traumatic Brain Injury: The Next Generation of Instruments


Why is this study needed?

The purpose of this study is to develop a scale (or set of scales) to measure quality of life (QOL) for people with Traumatic Brain Injury (TBI).

How will this study help patients and rehabilitation stakeholders?

Currently, there are no Health Related Quality of Life (HRQOL) measures that have been developed or tested and validated in samples of people with TBI. This study will provide the groundwork needed to establish HRQOL measures for people with TBI.  The measures developed as a part of this study can be used in future QOL research including clinical trials for people with TBI.

What are the project objectives?

  • Objective 1:  The primary objective of the study is to field test the Traumatic Brain Injury –Quality of Life (TBI-QOL) surveys in a sample of up to 200 individuals with (TBI).  The surveys pertain to cognitive health, emotional, physical, and social issues related to TBI.
  • Objective 2:  Data analysis on the project will seek to identify the best set of survey questions that adequately cover the topics within each conceptual domain. 

How will the project objectives be achieved?

Survey item banks will be developed related to cognitive health, emotional health, physical health, and social issues related to health. Up to 200 subjects with TBI will be recruited to complete survey item banks on which data analysis will be completed.

What agency funded the project?

National Institute of Disability and Rehabilitation Research (NIDRR)

NIDDR Grant Number: H133A080045

What is the duration of the project?

November 01, 2009 – August 31, 2010

Project Staff

Principal Investigator:

Allen Heinemann, Ph.D., Rehabilitation Institute of Chicago

Research Assitants:

Ana Miskovic @ 312-238-0713,  


Michael Jesselson at 312-238-1465,

Related Project Research Web Sitesu

National Institute of Disability and Rehabilitation Research (NIDRR)

Contact Information

For researchers and students:

Allen Heinemann


For members of the media: