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SCI-QOL - Measuring Quality of Life for Spinal Cord Injury: The Next Generation of Instruments


Why is this study needed?

The purpose of this study is to develop a scale (or set of scales) to measure quality of life (QOL) for people with Spinal Cord Injury (SCI).

How will this study help patients and rehabilitation stakeholders?

Currently, there are no Health Related Quality of Life (HRQOL) measures that have been developed or tested and validated in samples of people with SCI. This study will provide the groundwork needed to establish HRQOL measures for people with SCI. The measures developed as a part of this study can be used in future QOL research including clinical trials for people with SCI.

What are the project objectives?

  • Objective 1:  The primary objective of the study is to field test the Spinal Cord Injury– Quality of Life (SCI-QOL) surveys in a sample of up to 200 individuals with SCI. The surveys pertain to cognitive health, emotional health, physical health, and social health issues related to SCI. 
  • Objective 2:  Data analysis on the project will seek to identify the best set of survey questions that adequately cover the topics within each conceptual domain.

How will the project objectives be achieved?

Survey item banks will be developed related to cognitive health, emotional health, physical health, and social issues related to health. Up to 250 subjects with SCI will be recruited to complete the survey item banks on which data analysis will be completed.


What agency funded the project?

National Institute of Disability and Rehabilitation Research (NIDRR)

NIDDR Grant Number: 5RO1HD054659

What is the duration of the project?

April 1, 2009 – August 31, 2010

Project Staff

Principal Investigator:

Allen Heinemann, Ph.D., Rehabilitation Institute of Chicago

Research Assitants:

Ana Miskovic @ 312-238-0713,  


Sara Jerousek at 312-238-4856,

Related Project Research Web Sites

National Institute of Disability and Rehabilitation Research (NIDRR)

Contact Information

For researchers and students:

Allen Heinemann, PhD


For members of the media: